Consumer Involvement
2024 | 2023 | 2022 | 2021 | 2020 | 2019 | 2018 | 2017 | 2016 | 2015 | 2014 | 2013 | 2012 | 2011 | 2010 | 2009 | 2008 | 2007 | 2006 | 2005
Autism
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Jennifer Cook: Removing Negative Labels from Autism
Posted: April 4, 2023
Breast Cancer
- Krystle Hensley – BCRP Consumer Reviewer
Posted: October 18, 2023 - Angela K. Waller – Elevating Survivorship
Posted: July 25, 2023 -
Jamil Rivers – BCRP Consumer Reviewer
Posted: May 17, 2023
Combat Readiness-Medical
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US Army Master Sgt. Sam Patrick: Offering a Combat Medic s Perspective on Research Priorities
Posted: January 4, 2023
Duchenne Muscular Dystrophy
- Rose Juhasz – Consumer Reviewer Perspective and Appreciation of the CDMRP’s Duchenne Muscular Dystrophy Research Program
Posted: August 29, 2023 - Josh Argall – A Father and Duchenne Muscular Dystrophy Advocate
Posted: May 31, 2023
Lung Cancer
- Yovana Portillo – Accidentally Cancer Free
Posted: November 8, 2023 - Colleen Conner Ziegler – Being Part of the Solution in Hopes to Beat the Odds
Posted: January 27, 2023
Lupus
- Devyn Mitchell – Staying Involved in Her Own Lupus Journey
Posted: December 22, 2023
Melanoma
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From Stage IV Melanoma to No Evidence of Disease and Paying it Forward
Posted: May 5, 2023
Neurofibromatosis
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Laura Haslam: A Whole New Sense of Hope
Posted: October 24, 2023
Orthotics & Prosthetics Outcomes
- Phil Skiff: Hope Through Advocacy After a Below-Knee Amputation
Posted: October 6, 2023 - Dr. Susannah Engdahl: Three Perspectives in One
Posted: March 1, 2023
Ovarian Cancer
- Dr. Meredith Mitstifer: Taking Ovarian Cancer Awareness and Hope to New Heights
Posted: September 14, 2023
Peer Reviewed Medical
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Cassandra Trimnell: Advocating for Patients Through Sickle Cell Education Sickle Cell 101
Posted: November 21, 2023 -
Erin Malawer: Food Allergies No Longer Hold Her Family Back
Posted: August 9, 2023 -
Rhondell Domilici: Easing the Pain of Crohn s Disease by Helping Others
Posted: June 14, 2023 -
Alex Fielding: Finding Independence with Friedreich s Ataxia
Posted: May 12, 2023 - Bright Ansah: A Voice for Hepatitis B
Posted: April 12, 2023 - Daria Dragicevic: Finding Community Through Research and Patient Advocacy
Posted: March 14, 2023 - Karen Deitemeyer: Education of COPD Through Advocacy
Posted: February 8, 2023 - James Rose: Representing Historically Excluded Voices with Eating Disorders
Posted: January 11, 2023
Prostate Cancer
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Brian A. Jones: When you learn, teach. When you get, give.
Posted: June 9, 2023
Rare Cancers
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Story of Trena Brown: An Advocate for Rare Melanomas in People of Color
Posted: June 20, 2023 -
Brain Cancer Awareness Month: A Mother’s Story
Posted: May 25, 2023
Spinal Cord Injury
- David Smith – A Legacy of SCI Advocacy and Opportunity
Posted: July 21, 2023
Tick-Borne Disease
- Wendy Adams – Patient Advocate, Research Grant Director, and Former Lyme Disease Patient
Posted: March 21, 2023
Toxic Exposures
- Chelsey Simoni: Swapping Flight Suits for Hospital Scrubs, but the Mission Remains the Same
Posted: August 30, 2023 - Staff Sgt. Jen Burch, U.S. Air Force Retired: “Research Is the Key to Preventing Future Toxic Exposures and Saving Lives”
Posted: January 31, 2023
Traumatic Brain Injury and Psychological Health
- Consumer Story: Carl DeSpiegelaere
Posted: November 22, 2023
Tuberous Sclerosis Complex
- Heather Harden: Journey to Find a Cure for TSC
Posted: May 2, 2023
Last updated Thursday, April 4, 2024