Consumer Involvement
2024 | 2023 | 2022 | 2021 | 2020 | 2019 | 2018 | 2017 | 2016 | 2015 | 2014 | 2013 | 2012 | 2011 | 2010 | 2009 | 2008 | 2007 | 2006 | 2005
Autism
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Juan E. Dipini – Parent, Advocate, and Ambassador
Posted: April 5, 2022
Breast Cancer
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Carmen Pace – BCRP Consumer Reviewer
Posted: October 4, 2022 -
Lori Petitti – BCRP Consumer Reviewer
Posted: June 21, 2022 -
Leslie Falduto – BCRP Consumer Story
Posted: March 15, 2022
Chronic Pain Management
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Tom Norris: Managing Chronic Pain Through Support and Advocacy
Posted: April 8, 2022
Combat Readiness-Medical
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Ricky Ditzel – CRRP Consumer Story
Posted: August 26, 2022
Duchenne Muscular Dystrophy
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Clint Porter – DMDRP Consumer Reviewer
Posted: September 7, 2022 -
Jeff Bigelow – DMDRP Consumer Story
Posted: March 30, 2022 -
Ryan Saalman – Advocate for Duchenne Muscular Dystrophy
Posted: February 11, 2022
Lung Cancer
- Laura Book – Cancer Legs
Posted: November 29, 2022 - Renee Marrero – How three Lung Cancer Diagnoses Changed Our Lives
Posted: November 9, 2022
Lupus
- Phara Policar: The Challenges I Have Encountered with Lupus Expanded My Ability To Be A Powerful Voice
Posted: October 5, 2022
Melanoma
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Trena Brown ‐ Raising Melanoma Awareness within the Black Community
Posted: August 23, 2022 -
A Voice for the Rare Melanoma Patient Community
Posted: May 3, 2022 -
Bob Polkinghorn – Surviving Metastatic Melanoma, Facing Fears, and Giving Back
Posted: March 16, 2022
Military Burn
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SSG James West: Advocate for a Better Future for Burn Survivors
Posted: February 8, 2022
Neurofibromatosis
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Helga Pavlicek – NFRP Consumer Reviewer
Posted: May 11, 2022 -
Hannah Kim – NFRP Consumer Reviewer
Posted: January 12, 2022
Ovarian Cancer
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Sachia Powell – OCRP Consumer Reviewer
Posted: September 14, 2022 -
Mary Beth Mudrick – I Survived and I Thrived!
Posted: August 30, 2022
Pancreatic Cancer
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Lynn Matrisian, Ph.D. – A Powerful Advocate for Pancreatic Cancer
Posted: November 25, 2022
Peer Reviewed Alzheimer's
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Katie Brandt: A Caregiver and Advocate’s Story
Posted: November 4, 2022
Peer Reviewed Cancer
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In Her Own Words: Melinda Bachini Speaks about Her Journey with a Rare Cancer and Her Experiences with Living Life to the Fullest
Posted: October 25, 2022 -
Annie Horner – PRCRP Consumer Reviewer
Posted: July 20, 2022
Peer Reviewed Medical
- Julia Terrell Reminds Researchers of the “Why”
Posted: November 16, 2022 -
Lindsey Fontenot: Student and Storyteller Turned Pancreatitis Advocate, PRMRP Consumer Peer Reviewer
Posted: October 14, 2022 -
Jennifer Frobish: Fighting for People with Fragile X to Achieve Their Dreams, PRMRP Consumer Reviewer
Posted: September 13, 2022 -
Ron Lissak: A New Perception of Peripheral Neuropathy, PRMRP Consumer Reviewer
Posted: August 9, 2022 -
Christina Graves: Narcolepsy Patient, Advocate, and Scientist, PRMRP Consumer Reviewer
Posted: July 12, 2022 -
SFC Paul Bobish: A Combat Medic’s Perspective
Posted: June 3, 2022 -
Joan Block: Turning the Stigma of Hepatitis B into a Foundation for Hope
Posted: May 20, 2022 -
Stephanie Livingston: An Arthritis Advocate Who Says, “Yes!”
Posted: May 4, 2022 -
Sam Kirton Makes Every Breath Count
Posted: April 12, 2022 -
Heather Guidone: A Tireless Advocate for Endometriosis Awareness and Research
Posted: March 11, 2022 - Darlene Scott’s Empowering Quest to Educate Women about Heart Disease
Posted: February 16, 2022 -
Melissa McQueen and Her Family’s Transformation Through Their Cardiomyopathy Journey
Posted: January 18, 2022
Prostate Cancer
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Clarence Williamson: Enjoying Life to the Fullest and Giving Back to the Prostate Cancer Community
Posted: September 23, 2022 -
Christopher Provan: "The future of prostate cancer research has never been brighter"
Posted: September 2, 2022 -
Mical J. Roy: The Earlier The Better – One Survivor’s Journey and Commitment to “Speak Up and Speak Out”
Posted: March 8, 2022
Scleroderma
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Nikhil Bhat – SRP Consumer Story
Posted: June 13, 2022
Spinal Cord Injury
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Jason Stoffer: Regaining a Sense of Power by Being an Agent for Change
Posted: September 6, 2022 -
Melissa Nunn: Integrating as a Spinal Cord Injury Lived Experience Consultant within the Hiremath Research Team
Posted: May 27, 2022
Tick-Borne Disease
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Major Anders Karlsen's Battle with the Bugs
Posted: March 4, 2022
Tuberous Sclerosis Complex
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Jocelyn Cenna: Sister, Caregiver, Advocate, TSCRP Consumer Peer Reviewer
Posted: November 23, 2022
Last updated Tuesday, January 16, 2024