Research Highlights/News

2024 | 2023 | 2022 | 2021 | 2020

»  Look for consumer stories click here

2024

Research Highlights:

• New Investigator Award Recipients Bring New Ideas to the Neurofibromatosis Research Program for Fiscal Year 2022
• Sleep Disorders Among Children with Neurofibromatosis Type 1 (NF1)

2023

Research Highlights:

• Improving Hearing in NF2 Patients Who Use the Auditory Brainstem Implant (ABI)
• Development of Therapeutic Strategies for NF1-Associated Optic Pathway Glioma
• NFRP Supports Multi-Institutional Synergistic Idea Award to Investigate Inflammation During NF-Related Optic Tumor Formation
• NFRP Funds First Research OTA to Support Neurofibromatosis Clinical Trials

2022

Research Highlights:

• Neurofibromatosis Research Program (NFRP) Research Resources
• Genetic Risk Factors of Schwannoma Tumors
• Pharmacological Alk Inhibition Impacts Behavior and Cognition in Adult NF1 Mutant Mice

2021

Research Highlights:

• Nf1 Mutation Drives Neuronal-Activity-Dependent Initiation of Optic Glioma
• New Investigator Award Recipients Bring New Ideas to the Neurofibromatosis Research Program for Fiscal Year 2020
• Cabozantinib for Neurofibromatosis Type 1-Related Plexiform Neurofibromas: A Phase 2 Trial
• Everolimus Therapy for NF1-Optic Gliomas in Children: A Clinical Trial

2020

Research Highlights:

• The Pain of Neurofibromatosis
• The NFRP Supports the Future of NF Research with Several New Investigator Awards
• The NFRP Joins Efforts to Promote Open Science in NF Research
• Clinical Trials Address Quality of Life for Persons with Neurofibromatosis (NF1, NF2, and Schwannomatosis) with Resiliency Training Delivered via Live Video
• Study Finds That Bevacizumab Treatment for NF2-Related Vestibular Schwannomas Increases Reported Quality of Life in Adults and Children

Top of Page