Consumer Involvement
Consumer Stories - Neurofibromatosis
2023
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Laura Haslam: A Whole New Sense of Hope
Posted: October 24, 2023
2022
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Helga Pavlicek – NFRP Consumer Reviewer
Posted: May 11, 2022 -
Hannah Kim – NFRP Consumer Reviewer
Posted: January 12, 2022
2021
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Tammy Benson-O’Brien – NFRP Consumer Reviewer
Posted: March 12, 2021 -
Mikaela Bradley: Consumer, Advocate, and Neurofibromatosis Warrior
Posted: January 6, 2021
2020
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Vito Grasso - Consumer Reviewer: A Vital Perspectives
Posted: May 15, 2020
2019
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Catriona Miller: Working Toward Hope for NF2 Patients and Families
Posted: December 27, 2019 -
Gregg Erickson: My Perspective as a Neurofibromatosis Parent and Advocate
Posted: May 14, 2019
2018
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Kim Bischoff : A Consumer’s Perspective: “Headed in the Right Direction…”
Posted: August 7, 2018 -
Michelle Hirsch Donovan : Taking Control of Neurofibromatosis Through Consumer Action
Posted: May 11, 2018
2017
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Tracy Wirtanen : Tumors In Children, We Do Not Like Them!
Posted: December 6, 2017 -
Chad Leathers: A Story of Persistence in the Fight Against NF
Posted: May 18, 2017
2016
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Jason Marchetti: Having a Voice in NF Research
Posted: September 2, 2016 -
Lindsay Rosenfeld: Striving to Decrease the Impact of NF
Posted: May 18, 2016 -
Stuart Gilkison: Advocating to Solve the NF Puzzle
Posted: February 11, 2016
2015
- Linda Manth: An NF Advocate's Journey Comes Full Circle
Posted: June 12, 2015
2014
- Frank Buono: Following his Mother's Path in Fighting NF
Posted: May 30, 2014 - Sharon Loftspring - A mother-daughter team against NF
Posted: April 8, 2014 - Lori Ryan: Mother and advocate in the battle with Neurofibromatosis
Posted: February 5, 2014
2013
- Andrés Lessing - A Long-time Neurofibromatosis Advocate
Posted: August 22, 2013
2012
- Peggy Yehl Burke - The NF Learning Curve
Posted: November 13, 2012 - Barbara Franklin - Providing a Unique Perspective
Posted: June 11, 2012
2011
- Personal Story of Beverly Oberlander
Posted: November 3, 2011 - Dedicated to Finding a Cure: Jerry Patterson
Posted: January 13, 2011
2008
- A Consumer's Perspective: Ms. Sharon Loftspring
Posted: May 6, 2008
Last updated Tuesday, October 24, 2023