Consumer Involvement
Consumer Stories - Peer Reviewed Medical
2023
- Erin Malawer: Food Allergies No Longer Hold Her Family Back
Posted: August 9, 2023 - Easing the Pain of Crohn’s Disease by Helping Others
Posted: June 14, 2023 - Alex Fielding: Finding Independence with Friedreich’s Ataxia
Posted: May 12, 2023 - Bright Ansah: A Voice for Hepatitis B
Posted: April 12, 2023 - Daria Dragicevic: Finding Community Through Research and Patient Advocacy
Posted: March 14, 2023 - Karen Deitemeyer: Education of COPD Through Advocacy
Posted: February 8, 2023 - James Rose: Representing Historically Excluded Voices with Eating Disorders
Posted: January 11, 2023
2022
- Julia Terrell Reminds Researchers of the “Why”
Posted: November 16, 2022 - Lindsey Fontenot: Student and Storyteller Turned Pancreatitis Advocate, PRMRP Consumer Peer Reviewer
Posted: October 14, 2022 - Jennifer Frobish: Fighting for People with Fragile X to Achieve Their Dreams, PRMRP Consumer Peer Reviewer
Posted: September 13, 2022 - Ron Lissak: A New Perception of Peripheral Neuropathy, PRMRP Consumer Peer Reviewer
Posted: August 9, 2022 - Christina Graves: Narcolepsy Patient, Advocate, and Scientist, PRMRP Consumer Peer Reviewer
Posted: July 12, 2022 - SFC Paul Bobish: A Combat Medic’s Perspective
Posted: June 3, 2022 - Joan Block: Turning the Stigma of Hepatitis B into a Foundation for Hope
Posted: May 20, 2022 - Stephanie Livingston: An Arthritis Advocate Who Says, “Yes!“
Posted: May 4, 2022 - Sam Kirton Makes Every Breath Count, PRMRP Consumer Peer Reviewer
Posted: April 12, 2022 - Heather Guidone: A Tireless Advocate for Endometriosis Awareness and Research, PRMRP Consumer Peer Reviewer
Posted: March 11, 2022 - Darlene Scott’s Empowering Quest to Educate Women about Heart Disease, PRMRP Consumer Peer Reviewer
Posted: February 16, 2022 - Melissa McQueen and Her Family’s Transformation Through Their Cardiomyopathy Journey, PRMRP Consumer Peer Reviewer
Posted: January 18, 2022
2021
- Rocio Castrillon: Awareness of Inflammatory Bowel Disease through Endurance and Advocacy, PRMRP Consumer Peer Reviewer
Posted: November 7, 2021 - Sharon Reeder: Fighting Mitochondrial Disease to Keep the Power On, PRMRP Consumer Peer Reviewer
Posted: November 2, 2021 - Amy Johnson: Bringing Awareness and Change to the Type 1 Diabetes Community, PRMRP Consumer Peer Reviewer
Posted: August 25, 2021 - Lancer Stephens: Researcher and Advocate for the Diabetes Community, PRMRP Consumer Peer Reviewer
Posted: June 23, 2021 - Valerie Chang: Advocating for Better Respiratory Health Treatments, PRMRP Consumer Peer Reviewer
Posted: June 16, 2021
2015
- The Walking, Talking Kidney: Bill Brazell
Posted: August 7, 2015 - I Have Lupus, Lupus Doesn't Have Me: Cindy Coney
Posted: July 29, 2015 - Andrea Baer - Mending Little Hearts
Posted: July 24, 2015
2014
- Jon Sadler - Living and Thriving with Epilepsy
Posted: June 19, 2014
2012
- Andrew Selinger - (Fragile) X Marks a Life-Changing Spot
Posted: January 26, 2012
2011
- Teri Robert: Advocating and Taking Charge of her Brain
Posted: December 6, 2011 - Carolyn Grove: Fighting Osteoporosis is a TEaM Effort
Posted: July 7, 2011 - Outrageous, Courageous Optimism - One Woman's Journey with Osteogenesis Imperfecta
Posted: June 14, 2011 - Alexandra Walsh: From Plastic Surgery to Pediatrics, by way of Scleroderma
Posted: June 9, 2011 - Curtis Oliver: Surrendering, Admitting, Accepting, Believing
Posted: May 25, 2011 - Tracy Dixon-Salazar - A Mother's Love
Posted: April 14, 2011
2010
- Mr. Richard Mosca: Bringing Mesothelioma to the Forefront of People's Minds
Posted: November 12, 2010 - Battling the Beast, Growing a Garden: Ken Youner
Posted: August 20, 2010 - West Nile Virus Survivors' Advocate: Ms. Jennifer Holmes
Posted: March 17, 2010 - Well-Equipped to Manage Osteoporosis: Ms. Penny Shure
Posted: February 19, 2010 - Contributing to Cutting Edge Research in Neuroblastoma: Mr. Jasan Zimmerman
Posted: February 4, 2010
2009
- Walking a Mile: Ms. Jeannie Villarreal
Posted: December 11, 2009 - Take Charge of Your Illness and the Desire to Help: Mr. Paul Perrone
Posted: December 9, 2009 - Living with Tinnitus and Making a Difference: Mr. Scott Mitchell
Posted: February 16, 2009
Last updated Wednesday, August 9, 2023