James F. Gusella, Ph.D. (Chair)
Massachusetts General Hospital East

Peter R. W. Bellermann
The National Neurofibromatosis Foundation

Robert F. Murray, Jr., M.D. Ph.D.
Howard University College of Medicine

David Pleasure, M.D.
The Children's Hospital of Philadelphia

Kenneth Rosenbaum, M.D.
Children's National Medical Center

Allan E. Rubenstein, M.D.
Mount Sinai School of Medicine

Lawrence Mark Silverman, Ph.D.
University of North Carolina Hospitals

Judy A. Small, Ph.D.
National Institutes of Health

Louis-Gilbert Vézina, M.D.
Children's National Medical Center

Mary Ann Wilson
Neurofibromatosis, Inc.