Judy Small, Ph.D. (Chair)
The National Neurofibromatosis Foundation, Inc.

Peter Bellermann, M.P.A. (Chair Emeritus)
The National Neurofibromatosis Foundation, Inc. and International Neurofibromatosis Association

Bruce Korf, M.D., Ph.D. (Chair Elect)
University of Alabama

Peter Adamson, M.D.
University of Pennsylvania School of Medicine

Brenda Duffy, M.S.
Neurofibromatosis, Inc.

Robert Finkelstein, Ph.D.
National Institute of Neurological Diseases and Stroke

Nancy Fisher, M.D., M.P.H.
University of Washington, Seattle

Jackson Gibbs, Ph.D.
Merck Research Laboratories

William Johnson, M.D.
UMDNJ, Robert Wood Johnson Medical School

Eric Legius, M.D., Ph.D.
Catholic University of Leuven, Belgium