Peter Bellermann, M.P.A. (Chair)
The National Neurofibromatosis Foundation, Inc.

Allan Rubenstein, M.D. (Chair Emeritus)
Mount Sinai School of Medicine

Judy Small, Ph.D. (Chair-Elect)
The National Neurofibromatosis Foundation, Inc.

Peter Adamson, M.D.
Children's Hospital of Philadelphia

Neal Copeland, Ph.D.
NCI Frederick Cancer Research Center

Brenda Duffy, M.S.
Neurofibromatosis, Inc.

Nancy Fisher, M.D., M.P.H.
University of Washington, Seattle

Jackson Gibbs, Ph.D.
Merck Research Laboratories

Bruce Korf, M.D., Ph.D.
Harvard-Partners Center for Genetics and Genomics

John Mulvihill, M.D.
University of Oklahoma Health Sciences Center

Louis-Gilbert Vézina, M.D.
Children's National Medical Center