Allan E. Rubenstein, M.D. (Chair)
Mount Sinai School of Medicine

David Pleasure, M.D. (Chair Emeritus)
The Children's Hospital of Philadelphia

Peter R. W. Bellermann (Chair-Elect)
The National Neurofibromatosis Foundation

Peter Adamson, M.D.
Children's Hospital of Philadelphia

Neal Copeland, Ph.D.
NCI Frederick Cancer Research Center

Brenda Duffy, M.A.
Naurofibromatosis, Inc.

Kurt Fischbeck, M.D.
National Institutes of Health

Zach Hall, Ph.D.
University of California, San Francisco

John Mulvihill, M.D.
University of Oklahoma Health Sciences Center

Robert F. Murray, Jr., M.D., Ph.D.
Howard University College of Medicine

Louis-Gilbert Vézina, M.D.
Children's National Medical Center