Consumer Involvement
Consumer Stories - Tuberous Sclerosis Complex
2023
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Heather Harden: Journey to Find a Cure for TSC
Posted: May 2, 2023
2022
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Jocelyn Cenna: Sister, Caregiver, Advocate, TSCRP consumer review
Posted: November 23, 2022
2021
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Kate Barbato – 2nd Generation Advocate Becomes a Voice for Her TSC Community
Posted: May 12, 2021
2020
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Making a Difference in Ways One Never Thought
Posted: May 12, 2020 -
Matt Bolger: Working to Improve the Lives of Individuals with Tuberous Sclerosis Complex
Posted: February 28, 2020
2019
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Rob Grandia: From Construction to Advocacy, a Father’s Fight Against TSC
Posted: September 11, 2019 -
Tara Zimmerman-Tuttle: Working Together to Improve the Lives of Individuals with TSC
Posted: May 8, 2019
2018
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In Memory of Keith Hall: Making a Difference in TSC
Posted: July 26, 2018
2017
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Shelly Meitzler: A Perspective of Strength and Optimism on the Treatment and Care of TSC Patients
Posted: March 14, 2017
2016
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Marlo Grolnic: Everyone in the TSC Community Has Something to Give
Posted: May 13, 2016 -
Keith Hall: Never Stop Trying
Posted: February 17, 2016
2015
- Carole Pitard: There is Hope Because of Research
Posted: September 9, 2015 - Cathy Krinsky: Twenty-Plus Years of TSC Advocacy
Posted: May 27, 2015
2014
- Amy Dublinske: The Ups and Downs of Having a Child with TSC
Posted: June 24, 2014 - Cristy Wade: A Mother's efforts to defeat TSC
Posted: May 15, 2014
2013
- A Consumer's Perspective: Nancy Elling
Posted: November 7, 2013 - Reiko Donato: A Mother's Involvement in Helping Those Afflicted with TSC
Posted: August 29, 2013 - Life-long advocate in the fight against Tuberous Sclerosis Complex (TSC)
Posted: August 1, 2013
2011
- A parent's mission of love: Ron Heffron, TSCRP consumer review
Posted: May 26, 2011
Last updated Tuesday, May 2, 2023