Consumer Involvement
Consumer Stories - Amyotrophic Lateral Sclerosis
2024
- Mapping a Path Forward: Patient Involvement throughout ALS Therapeutic Development and Clinical Research
Posted: May 17, 2024
2021
- A Database to Signal Opportunity and Hope
Posted: December 8, 2021
2017
- Matt Bellina - A Consumer’s Perspective: An Increased Sense of Urgency
Posted: May 12, 2017
2016
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Kristin Quinn: Familial ALS and taking things one day at a time
Posted: May 6, 2016
2014
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Matt Bellina: "ALS is a worthy adversary, but each day I am hopeful."
Posted: November 14, 2014 -
Tim Heiser: The Optimistic Family Man
Posted: May 22, 2014 -
Fred Carlson - My ALS Story
Posted: May 7, 2014
2013
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Jim Humay -- "We will beat this thing"
Posted: June 6, 2013
2012
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Stephen Senderoff: Scientist, Musician, and Advocate
Posted: December 6, 2012 -
A Family Fights ALS
Posted: January 10, 2012
2009
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Continuing the Battle Against ALS and Making a Difference: Ellyn Phillips
Posted: December 23, 2009
Last updated Friday, May 17, 2024